Resources
Whether you are dealing with Alzheimer’s Disease, Lewy Body Dementia, Parkinson’s, Frontotemporal Dementia, Vascular Dementia or any of the many other forms of dementia, there are people and organizations you can turn to for help and support in a journey you didn’t choose to undertake.
You are not alone.
Government Agencies
Alzheimers.gov
Federal government’ main portal for Alzheimer’s information.
https://www.nia.nih.gov/health/alzheimers
National Institutes of Health (NIH)/National Institute on Aging (NIA)
Extensive information and free publications.
https://medlineplus.gov/
MedlinePlus
Extensive library of diverse Alzheimer’s articles, papers.
aaa1b.org
Area Agency on Aging
Government-funded non-profit provides help with training, respite care, referrals, and other assistance.
https://longtermcare.acl.gov/
Long term care planning (Medicaid, Insurance etc.)
https://www.nia.nih.gov/health/legal-and-financial-planning-people-alzheimers
Legal and Financial Planning
https://www.nia.nih.gov/health/driving-safety-and-alzheimers-disease
Driver safety
Non-Governmental Organizations
alz.org
Alzheimer’s Association
Offers:
- Information/publications
- Training
- 24/7 Volunteer helpline
- On-line Support/Message Boards
- Monthly support groups throughout Washtenaw
County and elsewhere
alzfdn.org
Alzheimer’s Foundation of America
Offers:
- Information / Fact Sheets
- Training
- Helpline
- Monthly support groups
Aboutalz.org
A series of short, informative videos about Alzheimer's, based on 2012 data.
alzinfo.org
Fisher Center For Alzheimer’s Research
Library of Research articles
alzheimer.ca
Alzheimers Society of Canada
theaftd.org
Association For Frontotemporal Degeneration
lbda.org/
Lewy Body Dementia Association
caregiveraction.org
Caregiver Action Network
caregiver.org
Family Caregiver Alliance
dfamerica.org
Dementia Friendly America
dementiafriendsusa.org
Dementia Friends USA
daanow.org
Dementia Action Alliance
Morningstar Ministries
(Free Online Videos for Caregivers) offers an extensive series of brief videos about various caregiving tools and tips, like simple activities to help keep your Loved One pleasantly occupied.
Nursing Home Abuse Justice
Founded to expose the widespread abuse and neglect that occurs in nursing homes and assisted living facilities.
US Against Alzheimer's
Largely an advocacy type outfit, but they do offer a good deal of useful information and free online courses about various aspects of dementia and caregiving.
Presentations
Alzheimer's: A Disease, Not a Disgrace
May 1, 2019 and May 4, 2019
Envisioning a Dementia Friendly Community
July 17, 2019
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Our presentation, "Alzheimer’s: A Disease Not A Disgrace," was taped by Saline Community TV. Click this link to view.
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Video Library
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