Resources

Whether you are dealing with Alzheimer’s Disease, Lewy Body Dementia, Parkinson’s, Frontotemporal Dementia, Vascular Dementia or any of the many other forms of dementia, there are people and organizations you can turn to for help and support in a journey you didn’t choose to undertake.

You are not alone.

Government Agencies

Alzheimers.gov

Federal government’s main portal for Alzheimer’s information.

National Institutes of Health (NIH)
National Institute on Aging (NIA)

Extensive information and free publications.
www.nia.nih.gov/health/alzheimers

MedlinePlus

Extensive library of diverse Alzheimer’s articles, papers.
medlineplus.gov

Area Agency on Aging

Government-funded non-profit provides help with training, respite care, referrals, and other assistance.
aaa1b.org

LongTermCare.gov

Long term care planning (Medicaid, Insurance etc.)
acl.gov/ltc

Legal and Financial Planning for People with Dementia

Legal and Financial Planning information
www.nia.nih.gov/health/legal-and-financial-planning-people-alzheimers

Driving Safety and Alzheimer's Disease

Driver safety
www.nia.nih.gov/health/driving-safety-and-alzheimers-disease

Non-Governmental Organizations

Alzheimer’s Association

Offers:

Information/publications
Training
24/7 Volunteer helpline
On-line Support/Message Boards
Monthly support groups throughout Washtenaw County and elsewhere
www.alz.org

Alzheimer’s Foundation of America

Offers:

Information / Fact Sheets
Training
Helpline
Monthly support groups
alzfdn.org

Aboutalz.org

A series of short, informative videos about Alzheimer's, based on 2012 data.
aboutalz.org

Fisher Center For Alzheimer’s Research

Library of Research articles
www.alzinfo.org

Alzheimers Society of Canada

alzheimer.ca/en

Association for Frontotemporal Degeneration

theaftd.org

Lewy Body Dementia Association

www.lbda.org

Caregiver Action Network

www.caregiveraction.org

Family Caregiver Alliance

www.caregiver.org

Dementia Friendly America

www.dfamerica.org

Dementia Friends USA

dementiafriendsusa.org

Dementia Action Alliance

daanow.org

Morningstar Ministries

(Free Online Videos for Caregivers) offers an extensive series of brief videos about various caregiving tools and tips, like simple dementia friendly activities to help keep your Loved One pleasantly occupied.
www.mmlearn.org

Nursing Home Abuse Justice

Founded to expose the widespread abuse and neglect that occurs in nursing homes and assisted living facilities.
www.nursinghomeabuse.org

US Against Alzheimer's

Largely an advocacy type outfit, but they do offer a good deal of useful information and free online courses about various aspects of dementia and caregiving.
www.usagainstalzheimers.org

Presentations & Media

Envisioning a Dementia Friendly Community

July 17, 2019

Alzheimer's: A Disease, Not a Disgrace

May 1, 2019 and May 4, 2019
Watch video below (taped by Saline Community TV)

Jim Mangi Comments Featured in Detroit Free Press

6/7/2021

Interim Director Jim Mangi's comments were featured in the article FDA approves first Alzheimer's drug to slow disease progression. Click here to read.

Jim Mangi Comments Featured in WXYZ-TV Interview

6/7/2021

Interim Director Jim Mangi was interviewed by reporter Brett Kast on a WXYZ-TV news feature, "Why the new FDA approved Alzheimer's drug is controversial, yet groundbreaking." Click here to view.

Jim Mangi Letter Featured in Scientific American

8/23/2020

Interim Director Jim Mangi's letter on dementia and personhood to the editors of Scientific American magazine in their September 2020 issue. Click here to read.